Privacy Policy

1. Introduction

This Privacy Policy explains how personal data is collected, used, stored, and protected when you visit this website or submit an Expression of Interest in relation to participating in a survey for the development of a Core Outcome Set for Depression.

We are committed to protecting your privacy and handling your personal data in accordance with applicable data protection law, including the General Data Protection Regulation (GDPR).

Please read this Privacy Policy carefully to understand how we handle your information.

2. Who is responsible for your personal data?

The data controller responsible for the processing of your personal data is:

Mr Christopher Veal
project.cosdepression@gmail.com

If you have any questions about this Privacy Policy or how your personal data is handled, please contact us using the details above.

3. What personal data do we collect?

Information will be collected when you submit an Expression of Interest

If you choose to complete the Expression of Interest form, we may collect the following information:

• Name
• Email address
• Country of residence
• Age group
• Preferred language

Submitting an Expression of Interest is voluntary. However, if you choose to submit an Expression of Interest, your name and email address are required, along with your consent to this Privacy Policy; country of residence, age group and preferred language are optional. Please do not provide any additional personal or sensitive information through the Expression of Interest form unless specifically requested.

Information collected automatically

The website may also collect limited technical information automatically when you visit it, depending on the website’s hosting and technical configuration. This may include information such as your IP address, browser type, device information, or website usage information.

4. Why do we collect and use your personal data?

We collect the information submitted through the Expression of Interest form for the purpose of:

• recording your interest in participating in the survey to select outcome domains for the Core Outcome Set for adults with depression;
• enabling us to contact you in connection with your Expression of Interest; and
• understanding, where optional information is provided, the range and characteristics of people expressing an interest.

We will not use your personal data for purposes that are incompatible with those described in this Privacy Policy.

5. What is our legal basis for processing your personal data?

We process the personal data you voluntarily provide through the Expression of Interest form on the basis of your consent, in accordance with Article 6(1)(a) of the GDPR.

By voluntarily submitting your information through the Expression of Interest form, you consent to the processing of your personal data for the purposes described in this Privacy Policy.

You may withdraw your consent at any time by contacting us at project.cosdepression@gmail.com. Withdrawal of consent will not affect the lawfulness of any processing carried out before consent was withdrawn.

6. Who has access to your personal data?

Your personal data will only be accessed by individuals who are authorised to manage the website and the Expression of Interest process and who need access to the information for the purposes described in this Privacy Policy.

We will not sell, rent, or share the personal information you provide through the Expression of Interest form with third parties.

7. International transfers

We do not intend to transfer your personal data outside the European Economic Area (EEA).

If the technical operation of the website or its service providers results in the transfer of personal data outside the EEA, appropriate safeguards will be used in accordance with applicable data protection law.

8. How long will we keep your personal data?

Personal data submitted through the Expression of Interest form will be retained for no longer than 14 days after the Expression of Interest period is closed.

After this period, all personal data submitted through the Expression of Interest process will be securely deleted.

We will not retain this information beyond this period.

9. How do we protect your personal data?

We take appropriate technical and organisational measures to protect personal data against unauthorised access, loss, misuse, alteration, disclosure, or destruction.

These measures include limiting access to personal data to authorised individuals and using appropriate security measures for the systems used to collect and store the information.

However, no method of transmitting information over the internet or storing electronic data can be guaranteed to be completely secure.

10. Your data protection rights

Subject to applicable data protection law, you may have the following rights in relation to your personal data:

• The right of access, to request a copy of the personal data we hold about you.
• The right to erasure, to request deletion of your personal data in certain circumstances.
• The right to withdraw consent, where processing is based on consent, you may withdraw your consent at any time.

To exercise any of these rights, please contact us at: project.cosdepression@gmail.com

11. Your right to lodge a complaint

If you believe that your personal data has been handled in a way that does not comply with applicable data protection law, you have the right to lodge a complaint with the relevant data protection supervisory authority.

If, after contacting us, you believe that your data protection rights have not been respected, you may lodge a complaint with the French Data Protection Authority (CNIL). Further information is available on the CNIL website (cnil.fr). You may submit a complaint either through the online service or by post to: CNIL – 3 Place de Fontenoy – TSA 80715 – 75334 PARIS CEDEX 07.

12. Automated decision-making

We do not use the personal data submitted through the Expression of Interest form to make decisions based solely on automated processing, including profiling, that produce legal or similarly significant effects on individuals.

13. Children

This website and the Expression of Interest process are not specifically intended for children.

We do not knowingly collect personal data from children unless this is specifically required and an appropriate lawful basis and any necessary safeguards are in place.

14. Changes to this Privacy Policy

We may update this Privacy Policy from time to time to reflect changes to the website, the Expression of Interest process, or applicable legal requirements.

Any changes will be published on this page, and the “Last updated” date at the top of this Privacy Policy will be revised accordingly.

15. Contact us

If you have any questions about this Privacy Policy or how we handle your personal data, please contact:

Mr Christopher Veal
project.cosdepression@gmail.com